Lyrics, poetry and art all meshed together

Monday, August 10, 2009

The power of writing has many consequences. It can reveal,inspire, destroy, elevate and sometimes it can be hurtful or brutal. Like some who consider suicide and leave their mark with an emotional letter, letting their loved ones know what caused them to end their life. I feel when you have that kind of gift to move people, it means all is not lost. God granted you these lovely hands and fingers for a reason.

The many challenges I had to face these past few months took a toll on my body. Yes, I did consider not to write in my blog and even allowed Mr. Writer's Block to take over. What made it worse is the ugly monster, I should say "my ugly demon" Lupus SLE (, came out of hiding again.

A year ago 2008, my life completely changed when Lupus paid me a nasty visit leaving me disfigured and I lost all the self-confidence I had in me. I was doing good in NY with a great job, my own apartment and many friends. But, sometimes you get a wake-up I was unrecognizable physically and mentally, forget about emotionally. I felt not even a therapist can fully understand this illness.

I was diagnosed in 2007 and it's been a battle ever since. Yet, I'm blessed to wake up everyday with family and friends who show support. To understand this auto-immune disease, one must be very patient and non-judgemental. For example, people will look at you and think, "She's pretty,well, she don't act or look sick". Then, 3 months later, you're swollen all over, can't barely get out of bed and depression sets in. Your mind plays tricks on you, makes you believe no one gives a damn and you might as well die in your sleep.

Lupus SLE is not an easy illness to deal with cause in order to fight it, you must be mentally strong to do so and make yourself a list on how to be ahead of it. Lupus loves stress and depression, actually most Lupus sufferers are affected with joint issues due to stress. Also, Lupus loves it when you eat the wrong type of food, dairy and wheat will eventually send a Lupus SLE candidate to the hospital. I've been there more than once. Also, it does not tolerate excessive sun or cold winters. I live in 100 degrees AZ heat and i'm still struggling, but not as bad as when I lived in NY.

I was very hurt when a blogger friend told me of Nikki's passing. It's sad to hear such news, especially knowing she was so young. I'm sure sure Nikki wouldn't want us to dwell on her loss or illness. She was a great blogger, writer, feisty with her words. She would want us to remember her wonderful writing and beautiful personality. The more we do, the most we celebrate her life and her light will continue to shine. You can show your love by stopping by her blog (, i'm sure her family would appreciate it. As for me, i'm taking it one day at a time with much prayer and meditation.


1.Thankful for my mom who is a true believer of natural medicine and who is trying her hardest to make me feel better
2. The pouring rain that woke me up this morning and kept me smiling
3. Delicious salad I made for lunch and dinner
4. Jazz music which helps relax my body and mind
5. Phone call from friends who continue to show love and concern


I can't tell you why we leave this earth
all I know is once we do
our footprints remain on the sheets we write on
we are never forgotten
family and friends will make sure of it


Rose said...

Love coming here. Enjoyed your poetry! Sorry about the lupus...

Ty said...

You know that I love you so much Cath. Be encouraged and looking forward to your healing story.

Ali's Zay said...

Gosh darn it, one less excuse for me not to start blogging again. Great hearing your voice.


Lyrically speaking said...

Rose: Thanks for stopping by, feeling a little better today

Ty: Feeling is mutual, thanks

Ali Zay: Hope you'll be blogging soon, miss your writing so much

Dancing with Light said...

• Miss Dela •

I am lost for words....
This story you share has me wondering - when I leave this World - will anyone notice?

**GRATEFUL** for the Moment of NoW

In Peace
- Libra Moon

Poetikat said...

I am very sorry to hear of your affliction, but happy to hear that you have a good support system of family and friends. I will add you to my prayers.

Thank you so much for your generous comment at Poetikat's Invisible Keepsakes. I will be following you from now on, though you may not notice me until I return from my break come October.


Lyrically speaking said...

Libra Moon: how are you? Yes, i'm sure many will notice cause you're a beautiful person inside and out

Poetika: Thanks for stopping by, I can use all the prayers, thanks again and come back to visit

Anonymous said...

my wellwishing and prayer for light, you are beautiful,
healing comes to you from above below and all around
and angels ensure it, keep creating keep smiling XOX

Cynthia said...

Sending loving vibes to you
Cathy. You are a strong and
beautiful women - who writes
meaningful poetry.

Maxine said...

I was sorry to read this post Cathy. I suffer from Crohn's disease which also feeds on stress and 'poor' diet. Creeps up on you when you least expect. Big love to you.

Deb said...

you have such beauty in your spirit... thank you for sharing your pain.